Effective date for a decrease or end of a Carer Support award
Change of circumstances
When a client has a change of circumstances that means their Carer Support award would decrease or end, the effective date for this change will be:
If the client has told us on time (Carer Support Payment regulations, regulation 27)
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If the client has told us about the change on time (‘as soon as reasonably practicable’) the effective date is the first day of the award week following the week in which we make the determination to change the award.
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This would include if the carer has told us, immediately after a change, or within a reasonable amount of time after becoming aware of the change.
- This could mean, for example, that a change to the carer’s earnings could be reported after it happened but would take effect from the date that we use the information reported to consider the carer’s entitlement and make the determination.
- In some situations we will receive information from third parties on a client’s change of circumstances – for example earnings information from HMRC or qualifying benefit information from DWP. If we get information from a third party before a client has told us about a change of circumstances it doesn’t necessarily mean the client has failed to tell us on time.
- If the client has died, we may be notified by another person, or via the Tell Us Once service. Where the client has died, the determination to end the award is effective from the start of the award week following the week in which the client died. If the cared for person or additional cared for person dies, this is treated differently – please see ’Death of the cared for person or additional cared for person’ section.
Example 1 – we are notified of an earnings increase by HMRC
Kobi is receiving Carer Support as he cares for his mother Afia. Kobi also works part time at a shop. He takes on extra shifts at Christmas and makes extra money in December. We receive an alert on 18/12/26 from HMRC showing that Kobi has received earnings which are over the threshold that week. We contact Kobi on 21/12/26 to check if they have any allowable deductions which would bring their earnings below the limit. There are no deductions so earnings are over the limit. We make the determination that Kobi is no longer entitled to Carer Support due to earnings. As the change has been reported on time, the change takes effect from 28/12/26, the first day of the award week following the week in which we have made the determination.
For current and previous earnings thresholds please see operational guidance on benefit amounts.
Example 2a –notification from carer that they have stopped providing care
Sarah is receiving Carer Support for caring for her brother, Isaac. She reports on 20/04/2026 that she is no longer providing 35 hours of care a week for her brother as of 10/04/2026 as he has moved into a care home. On 21/04/2026 the change of circumstances is processed and we make the determination that Sarah is no longer entitled to Carer Support. As the change has been reported on time, it takes effect from 26/04/2026, the first day of the award week following the week in which we made the determination.
Example 2b – notification from carer that they have stopped providing care to an additional cared for person
Jian’s Carer Support award includes Carer Support Payment and Scottish Carer Supplement for caring for his mother Ling, and Carer Additional Person Payment for caring for his aunt Mei. Mei moves to live with her granddaughter and Jian stops providing care for her on 30/04/2026. Jian reports this the following Monday, 4/05/2026. The client adviser makes a determination on 7/05/26 that Jian’s Carer Additional Person Payment should stop, but he remains entitled to Carer Support Payment and Scottish Carer Supplement. Because the change was reported on time, it takes effect from the first day of the award week following the determination – that is, Sunday 10/05/26.
If the client has failed to tell us, or failed to tell us on time (Carer Support Payment regulations, regulation 27)
- If the client doesn’t tell us about a change of circumstances, or doesn’t tell us on time, the effective date is the first day of the award week following the week in which the individual should have notified us..
- It is reasonable to expect a client to report a change within 4 weeks. In considering whether a person reported a change as soon as reasonably practicable we must take into account the circumstance that that individual found themselves and this should include:
- What information the person was given about changes to report and how to report them, i.e. notifications or communications with the client.
- When the change happened versus when the individual became aware of it
- How long it took the person to report the change after they became aware of it
- If the change wasn’t reported within a month were there any exceptional or mitigating circumstances that practically prevented them from reporting the change earlier, and was this reasonable. An individual, or anyone acting on their behalf, cannot be reasonably expected to notify a change in circumstances within one month if there are special circumstances which mean they are unable to promptly report the change.
- In the case of a case transfer from Carer’s Allowance to Carer Support Payment we should take into account of the contents of the intro and outcome letter sent to the client in particular. These were specifically designed to advise the client of the basis of their award and instruct them to tell us if the information is wrong or anything changes to prevent overpayments at an early stage.
- A client whose award has transferred from Carer Support Payment to Carer Support will have received a letter informing them about the transfer, which will also remind them to notify us of any changes.
- We will get some information on changes to client’s circumstances from sources other than the client – for example earnings information from HMRC or qualifying benefit information from DWP. We may receive this information before a change of circumstances is reported by the client. This doesn’t necessarily mean the client has failed to tell us, or failed to tell us on time.
- You should consider whether or not a client has informed us of any change ‘as soon as reasonably practicable’ as set out above.
- Where a client has variable earnings and has been awarded Carer Support on the basis of average earnings, this decision could also consider the point at which it would be reasonable to expect the client to know that their average earnings had exceeded the threshold.
- If the change relates to a change in the situation of the cared for person (or additional cared for person) or their benefits this should take into consideration when the cared for person/additional cared for person or the client was informed about the change. Other factors can also be taken into consideration as set out in the guidance
Please note, in the following examples, the 2025/26 earnings threshold has been used for the purposes of the example. For current and previous earnings thresholds please see operational guidance on benefit amounts.
Example 3 – earnings increase reported late
Siobhan is caring for her son, Finley and receiving Carer Support . When she applied for Carer Support she was not working, but is a hairdresser and in March she starts taking on clients at a friend’s salon. She makes £600 in March and £900 in April and on 25/05/2026 she informs Social Security Scotland that she has earnings from self-employment which are over the limit for Carer Support. Information on Siobhan’s earnings for March and April are requested and she has no allowable deductions for childcare or other expenses. Siobhan has not told us on time about changes to her earnings and after looking at the detail of her earnings it is determined that her earnings were over the limit on average from 19/04/2026. The decision maker considers that it the client should have notified Social Security Scotland when earnings went over the limit, therefore the effective date for this change is the first day of the award week after the week in which her earnings were first over the earnings limit. Her Carer Support entitlement ended on 26/04/2026.
Example 4 – client fails to report that they are no longer providing care
Aditi receives Carer Support for caring for her Uncle Kiran. Aditi is moving with her family to a new home so her sister, Anjali is going to take over caring for Kiran. Aditi stops providing care for Kiran on 07/10/2026. When Anjali makes an application for Carer Support on 12/11/2026 it is identified that Aditi is still being paid and has not informed us that she is no longer providing care. As Aditi hasn’t informed us of her change of circumstances, the effective date is the first day of the benefit week after the week in which she should have notified us. The decision maker considers that as Aditi stopped providing care to Kiran on a specific date, it was reasonable to expect her to notify us in that benefit week. Therefore the determination to end Aditi’s CS will take effect from the start of the following benefit week, which is 11/10/2026.
Example 5 – client reports a change in earnings late but this is considered reasonable
David is caring for his sister Lorna and works part-time at a bar. His earnings vary because he works different shifts week to week, but are under the threshold on average over 13 weeks, at £185 p/w. On 01/07/2025 he reports a change after receiving a payslip as he thinks his earnings may be higher than normal. HMRC data shows David’s average earnings were over the threshold from 25/05/2025, to £197 p/w. It is considered reasonable that the change is reported slightly more than 4 weeks after the change was flagged through HMRC given the variation in David’s earnings. The effective date of the change would be the first day of the award week after the week we make the determination, and his award would end from 06/07/2025.
Where a new determination is being made following a determination where there was an error (including official error)
Where we need to make a new determination of entitlement to Carer Support because we have identified that a previous determination was incorrect due to an error resulting in an underpayment or overpayment [see chapter on determinations made in error, the change takes effect on the first day of the award week in which the earlier determination took effect (Carer Support Payment regulations, regulation 27(1)(b)).
Example 6 – client was awarded Carer Support due to an error
Stephanie is 18 and studying for Highers (a non-advanced course) at college. She includes this on her application and is contacted by Social Security Scotland to check her eligibility. Following the call it is incorrectly recorded that she is studying for a Higher National Certificate (HNC – an advanced course) and she is awarded Carer Support on 08/04/2026 with a start date of 22/03/2026. On 15/04/2026, Stephanie contacts Social Security Scotland following advice from a carer support organisation to check if she should be getting payments. She confirms she is studying for Highers and it is identified that the original decision had been made in error, resulting in Stephanie being given an award to which she was not entitled. It is determined that:
- Stephanie is not entitled to Carer Support
- the effective date is the first day of the award week in which the earlier determination took effect. Stephanie is not entitled to Carer Support from 22/03/2026.
If we consider it would be 'unjust' in the circumstances
- In situations where a carer hasn’t told us on time about a change of circumstances, but it is considered that it would be ‘unjust’ given the circumstances to set the effective date on the first day of the award week following the week in which they should have told us, a later effective date can be set (Carer Support Payment regulations, regulation 27(2)).
- This is so that individuals are not unduly disadvantaged because of circumstances beyond their control, genuine and reasonable mistakes made by them, or anyone acting on their behalf, and they reported the change as soon as they reasonably could be expected, under the circumstances.
- We also have the power to set a later date if we feel it would be unjust, given the circumstances, for the effective date to be
- The first day of the benefit week following the determination or
- The date that an earlier determination made in error took effect
Example 7 – client is too ill to report a change when it happens
Nico is caring for his mother, Thea and getting Carer Support Payment which transfers to an award of Carer Support on 15/03/2026. Nico is in a car accident and is admitted to hospital on 20/03/2026. Nico’s sister Helena takes over caring for Thea while Nico is in hospital but doesn’t know about Nico’s Carer Support award and Nico is too ill to tell Thea about this or report any changes. Nico makes a full recovery and is discharged from hospital and resumes caring for Thea on 24/04/2026. He reports the hospital stay to Social Security Scotland on 28/04/2026 but with previous breaks from caring in this period this means his award should have stopped from 22/03/2026 to 18/04/2026. It is determined that:
- it would not have been possible for Nico to have reported the change given the circumstances
- a later effective date can be set so that Nico is not disadvantaged. In this situation, setting a later effective date for the hospital stay of 26/04/2026 would mean no overpayment had been made to Nico.
Ending Carer Support after a suspension
For more details about the suspension process please see:
- Payment of Carer Support decision making guidance
- ‘Suspend a Case Payment’ operational guidance
An award of Carer Support may have been suspended because the individual has not responded to a request for information. If the individual either fails to respond within the period specified (Carer Support Payment Regulations, regulation 33(c)) in the suspension letter, or provides information indicating they are no longer entitled to Carer Support (Carer Support Payment Regulations, regulation 33(b)), a determination must be made to end the award.
Death of a cared for person or additional cared for person
When a carer is getting a component of Carer Support and the person they are caring for dies, or an additional cared for person dies, the relevant component(s) of Carer Support can continue to be paid either:
- Until the first day of the award week following the week in which the carer no longer satisfies any of the eligibility criteria other than providing care, or
- For a period of 12 weeks after the first day of the award week following the week in which the cared for person (or additional cared for person) died (Carer Support Payment Regulations, regulation 16(4))
For more information please see guidance on Death of an Individual.
Example 10a - carer continues to satisfy other eligibility criteria after the cared for person dies
Liz is getting Carer Support for caring for her husband, Donald. Donald dies on 16/06/2026 and Social Security Scotland received a report of the death through Tell Us Once.
Liz’s circumstances are otherwise unchanged, and her Carer Support ends on 13/09/2026, the first day of the award week 12 weeks after the week in which her husband died.
Example 10b – carer continues to satisfy other eligibility criteria after an additional cared for person dies
Marcus is getting Carer Support including Carer Support Payment component for looking after his wife Jess, and he also receives Carer Additional Person Payment for looking after their son William. William dies on 18 August 2026 and Social Security Scotland receive a report of the death through Tell Us Once.
Marcus’s circumstances are otherwise unchanged and so his Carer Additional Person Payment will stop from the first day of the award week 12 weeks after the week William died, that is 15 November 2026. Marcus’s Carer Support Payment and Scottish Carer Supplement remain payable.
Example 11 - carer becomes ineligible within 12 weeks of the cared for person’s death
Ryan is getting Carer Support for caring for his mother, Doreen. Doreen dies on 30/03/26 and Social Security Scotland receives a report of the death later that week through Tell Us Once.
Ryan’s Carer Support can continue after his mother’s death. Ryan then moves permanently to live with his other family in Australia on 01/05/2026. As Ryan is no longer ordinarily resident in Scotland or habitually resident in the Common Travel Area, he is no longer eligible.
His Carer Support ends on 03/05/2026, the first day of the award week following the week in which he stops being eligible.
Temporary Stops in Entitlement - exceptions to usual effective date rules
There is more detail about temporary stops in entitlement in the Payment of Carer Support chapter.
For temporary stops in entitlement, where a determination without application has been made to end entitlement due to
- earnings,
- breaks in care,
- the cared for person voluntarily relinquishing their qualifying disability benefit
- the cared for person having moved to Scotland from another part of the UK and no longer getting their qualifying disability benefit
- the individual being temporarily absent from, and no longer treated as present in, the Common Travel Area (Carer Support Payment Regulations, regulation 23(1))
The normal effective date rules apply in deciding when Carer Support should end (Carer Support Payment Regulations, regulation 27).
Different effective date rules apply for ‘temporary stops in entitlement’ where:
- The cared for person’s qualifying disability benefit has been set to £0 due to a stay in hospital or residential care, or legal detention (or where their payment has been stopped in these circumstances if it is a DWP disability benefit as these don’t use £0 rating). In this situation the Carer Support should end and the effective date would be the first day of the award week following the week in which the qualifying disability benefit is set to £0 or payment is stopped (Carer Support Payment Regulations, regulation 23(6))
- An additional cared for person’s qualifying disability benefit has been set to £0 or payment stopped due to a stay in hospital or residential care or legal detention. In this situation a determination without application should be made to end the Carer Additional Person Payment component. The effective date would be the first day of the award week following the week in which the qualifying disability benefit is set to £0 or payment is stopped (Carer Support Payment Regulations, regulation 23A).
- The cared for person’s qualifying disability benefit has been suspended due to failure to respond to a request for information (or uncertainty around entitlement if it is a DWP benefit). In this situation the Carer Support should end and the effective date would be the first day of the award week following the week in which the qualifying benefit has been suspended for 4 weeks (Carer Support Payment Regulations, regulation 23(7)).
- An additional cared for person’s qualifying disability benefit has been suspended due to a failure to respond to a request for information (or uncertainty around entitlement if it is a DWP benefit). In this situation a determination without application should be made to end the Carer Additional Person Payment component. The effective date would be the first day of the award week following the week in which the qualifying benefit has been suspended for 4 weeks (Carer Support Payment Regulations, regulation 23A).
- Note however that suspensions of a qualifying disability benefit where information has not been requested or there is not uncertainty around entitlement – for example, where there is an issue with payments to a third party etc – do not affect the carer’s entitlement to any of the components of Carer Support.
Example 12a - Qualifying Disability Benefit stops due to a hospital stay
Alec is getting Carer Support and caring for his wife, Ginnie. In December, Ginnie is admitted to hospital with Pneumonia and due to complications she remains in hospital for a number of weeks. The Daily Living Component of her Adult Disability Payment is set to £0 after 28 days in hospital, on 13/01/2027.
Alec’s Carer Support ends from 17/01/2027, the first day of the award week following the week in which the qualifying disability benefit was set to £0.
The temporary stops in entitlement rules mean that Alec’s Carer Support can be restarted if he becomes entitled again within 26 weeks of the determination that ended his Carer Support award. The normal effective date rules about resuming entitlement (Carer Support Payment Regulations , regulation 23(10)) will apply to when Alec’s Carer Support can be restarted. These rules are dealt with in the Effective Date for an Increase or Reinstatement of an Award section of this guidance.
Example 12b – Qualifying Disability Benefit of Additional Cared For Person stops due to a stay in residential care.
Eilidh’s award of Carer Support includes Carer Support Payment and Scottish Carer Supplement for caring for her mother Morag and Carer Additional Person Payment for caring for their neighbour Murdo. In June, Murdo goes into a care home for a trial period and ends up staying for six weeks. Murdo’s Pension Age Disability Payment is set to £0 after 28 days in the care home, on 14/07/26. A determination without application is made on Eilidh’s Carer Support. The result is that Eilidh’s award of Carer Additional Person Payment component stops from the first day of the next award week, that is Sunday 19/07/26.
The normal effective date rules about a change of circumstances leading to an increase in entitlement (Carer Support Payment Regulations, regulation 28) apply to when Eilidh’s Carer Additional Person Payment can be restarted.
Example 13 - Qualifying Disability Benefit stops due to suspension for failure to respond to a request for information
Carly receives Carer Support for caring for her brother Derek. Derek does not respond to a request for supporting information concerning his Adult Disability Payment, and also does not respond to the subsequent reminder letters. His benefit is suspended from 25 October 2026.
Carly’s Carer Support should be ended from Sunday 22 November 2026, the first day of the award week after the qualifying disability benefit has been suspended for four weeks.
Derek subsequently provides supporting information on 18 December 2026 and his Adult Disability Payment is put back into payment. As this is within 26 weeks of a determination to end Carly’s Carer Support, her award can re-start without her having to make a new application. The effective date for the reinstatement of Carly’s award will be the first day of the award week in which the Derek’s entitlement to the qualifying disability benefit begins (Carer Support Payment Regulations, regulation 23(11)).